Comments for Macular Degeneration Support Canada http://www.amdsupport.ca Macular Degeneration Eye Disease and Eye Care Blog Thu, 22 Mar 2012 03:52:45 +0000 hourly 1 http://wordpress.org/?v=3.3.2 Comment on Eylea Treatment for Macular Degeneration by admin http://www.amdsupport.ca/2011/08/23/eylea-treatment-for-macular-degeneration/comment-page-1/#comment-20227 admin Thu, 22 Mar 2012 03:52:45 +0000 http://www.amdsupport.ca/?p=784#comment-20227 The scientific name is aflibercept. The scientific name is aflibercept.

]]> Comment on Macular Degeneration Drugs by Mary http://www.amdsupport.ca/2011/10/20/macular-degeneration-drugs/comment-page-1/#comment-20209 Mary Wed, 21 Mar 2012 12:01:30 +0000 http://www.amdsupport.ca/?p=802#comment-20209 Roberta, thanks for your post. I was recently diagnosed with this condition. I couldn't believe this could happen to someone my age. I am also just sixty. Last year my opthamologist noticed a scar (which wasn"t there the year before) and sent me to a retinal specialist. The specialist said it could be the start of macular degeneration and said he would check it again next year. I guess he didn't think it would change to the wet kind. In about 8 months I noticed a change in my vision and after going to the specialist again, found I had the wet macular degeneration. I was shocked by the sudden change and the fact that I was so young. Seeing your post made me realize it really CAN happen like this. The specialist treated me immediately with Avastin, but I've heard some patients have gone blind with this drug due to the risk of infection. Now I'm wondering if I should be on Lucentis instead. I heard that could cause increased occular pressure, but the other drug could cause blindness if you get an infection. Have you heard anything about the benefits to Lucentis compared to Avastin? Roberta, thanks for your post. I was recently diagnosed with this condition. I couldn’t believe this could happen to someone my age. I am also just sixty. Last year my opthamologist noticed a scar (which wasn”t there the year before) and sent me to a retinal specialist. The specialist said it could be the start of macular degeneration and said he would check it again next year. I guess he didn’t think it would change to the wet kind. In about 8 months I noticed a change in my vision and after going to the specialist again, found I had the wet macular degeneration. I was shocked by the sudden change and the fact that I was so young. Seeing your post made me realize it really CAN happen like this. The specialist treated me immediately with Avastin, but I’ve heard some patients have gone blind with this drug due to the risk of infection. Now I’m wondering if I should be on Lucentis instead. I heard that could cause increased occular pressure, but the other drug could cause blindness if you get an infection. Have you heard anything about the benefits to Lucentis compared to Avastin?

]]> Comment on Learn Braille on the Internet for Free by alagammai http://www.amdsupport.ca/2008/03/31/learn-braille-on-the-internet-for-free/comment-page-1/#comment-20182 alagammai Tue, 20 Mar 2012 03:01:36 +0000 http://www.amdsupport.ca/new/?p=116#comment-20182 i would like to learn braielle so that i could help certain children in my centre to giude them since they have no where to be guided please help i would like to learn braielle so that i could help certain children in my centre to giude them since they have no where to be guided please help

]]> Comment on Visual Aids for Visually Impaired by maggie http://www.amdsupport.ca/2010/02/11/visual-aids-for-visually-impaired/comment-page-1/#comment-20149 maggie Sat, 17 Mar 2012 10:19:18 +0000 http://www.amdsupport.ca/?p=674#comment-20149 try this site for a voice dialling phone: http://www.independentliving.co.uk/visual-aids.html#label try this site for a voice dialling phone:
http://www.independentliving.co.uk/visual-aids.html#label

]]> Comment on Macular Degeneration Stem Cell Treatment Trials Start in July by James D. Farmer http://www.amdsupport.ca/2011/07/11/macular-degeneration-stem-cell-treatment-trials-start-in-july/comment-page-1/#comment-20137 James D. Farmer Fri, 16 Mar 2012 18:57:36 +0000 http://www.amdsupport.ca/?p=737#comment-20137 For the millions of people suffering from MD, I among them, the use of stem-cells that would otherwise be trashed is a very good idea. For the millions of people suffering from MD, I among them, the use of stem-cells that would otherwise be trashed is a very good idea.

]]> Comment on Macular Degeneration Stem Cell Treatment Trials Start in July by Julie http://www.amdsupport.ca/2011/07/11/macular-degeneration-stem-cell-treatment-trials-start-in-july/comment-page-1/#comment-20114 Julie Thu, 15 Mar 2012 17:09:33 +0000 http://www.amdsupport.ca/?p=737#comment-20114 Hi Folks, has anyone heard of any updates or outcomes from this trial. I've recently become friends with a 20 year old who has been suffering from macular degeneration since she was 10 years old. She has a love of horses, - which has grown as her vision has deteriorated. She will likely never be able to drive, so this gives her some freedom! Her current prognosis has been challenging with mapping her career plans. Would love to find a link or contact to review the results and see if there is / was / will be a second trial group or outcome from this! Hi Folks, has anyone heard of any updates or outcomes from this trial. I’ve recently become friends with a 20 year old who has been suffering from macular degeneration since she was 10 years old. She has a love of horses, – which has grown as her vision has deteriorated. She will likely never be able to drive, so this gives her some freedom! Her current prognosis has been challenging with mapping her career plans. Would love to find a link or contact to review the results and see if there is / was / will be a second trial group or outcome from this!

]]> Comment on Eylea Treatment for Macular Degeneration by Tulio http://www.amdsupport.ca/2011/08/23/eylea-treatment-for-macular-degeneration/comment-page-1/#comment-20048 Tulio Sun, 11 Mar 2012 18:30:15 +0000 http://www.amdsupport.ca/?p=784#comment-20048 Dear AMD Support, What is the scientific name of Eylea? Sincerely, Dr Tulio Hannas, MD PhD Dear AMD Support,
What is the scientific name of Eylea?
Sincerely,
Dr Tulio Hannas, MD PhD

]]> Comment on Macular Degeneration Symptoms – A Refresher by sundas http://www.amdsupport.ca/2009/06/18/macular-degeneration-symptoms-a-refresher/comment-page-1/#comment-19949 sundas Mon, 05 Mar 2012 05:45:17 +0000 http://www.amdsupport.ca/?p=609#comment-19949 my brother was sufferng from genetic maculopathy he is 28 years old plz tell me about the treatment of this deaseas my brother was sufferng from genetic maculopathy he is 28 years old plz tell me about the treatment of this deaseas

]]> Comment on Macular Degeneration Stem Cell Treatment Trials Start in July by candy http://www.amdsupport.ca/2011/07/11/macular-degeneration-stem-cell-treatment-trials-start-in-july/comment-page-1/#comment-18722 candy Sat, 28 Jan 2012 17:53:27 +0000 http://www.amdsupport.ca/?p=737#comment-18722 I am so excited about these findings. I, too, have dry macular and it totally changes your life. Let's hope this works for all of us I am so excited about these findings. I, too, have dry macular and it totally changes your life. Let’s hope this works for all of us

]]> Comment on Macular Degeneration Stem Cell Treatment Trials Start in July by claudia http://www.amdsupport.ca/2011/07/11/macular-degeneration-stem-cell-treatment-trials-start-in-july/comment-page-1/#comment-18689 claudia Thu, 26 Jan 2012 15:44:54 +0000 http://www.amdsupport.ca/?p=737#comment-18689 My 91 yr. old mother has AMD in both eyes and has been blind for the past 6 years. Aside from her vision, she is a very healthy 91 yr. old however since she became blind (sees only minimal shadows) she has been very depressed and is losing her will to live. If the stem cell treatment works this would truly be a god send for her. She hasn't given up that one day she will be able to see her children's and grandchildren's faces again. I cannot imagine how difficult it must be for a vibrant energentic person getting up one morning, having her cup of coffee and reading the newspaper and suddenly, wow, no vision. This is what happened to my mother. So sudden. If there is any information or clinic you can refer me to that would be wonderful. I know my mother would try anything in order to get even some of her vision back. My 91 yr. old mother has AMD in both eyes and has been blind for the past 6 years. Aside from her vision, she is a very healthy 91 yr. old however since she became blind (sees only minimal shadows) she has been very depressed and is losing her will to live. If the stem cell treatment works this would truly be a god send for her. She hasn’t given up that one day she will be able to see her children’s and grandchildren’s faces again. I cannot imagine how difficult it must be for a vibrant energentic person getting up one morning, having her cup of coffee and reading the newspaper and suddenly, wow, no vision. This is what happened to my mother. So sudden.

If there is any information or clinic you can refer me to that would be wonderful. I know my mother would try anything in order to get even some of her vision back.

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